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The listed citations are published in peer-reviewed journals, with links for download, if available.
Manuscripts in progress and under peer review are not mentioned here. |
· Kathleen M. West, Erika Blacksher, Kerri L Cavanaugh, Stephanie Malia Fullerton, Ebele M Umeukeje, Bessie A. Young, Wylie Burke. "At the Research-Clinical Interface: Returning Genetic Results to Research Participants," Clinical Journal of the American Society of Nephrology. (in press) *Invited review article for special series on genomics for kidney disease specialists.
· Young, Bessie A., Erika Blacksher, Kerri L Cavanaugh, Barry I. Freedman, Stephanie Malia Fullerton, Jeffrey Kopp, Ebele M Umeukeje, Kathleen M. West (Corresponding Author), James G. Wilson, Wylie Burke. "APOL1 Testing in African Americans: Involving the Community in Policy Discussions," American Journal of Nephrology. 50(4):303-311. doi: 10.1159/000502675
· James, Rosalina, Kathleen M. West, Katrina Claw, Abigail Echo-Hawk, Leah Dodge, Adrian Dominguez, Maile Taualii, Ralph Forquera, Kenneth Thummel, Wylie Burke. (2018) “Responsible Research with Urban Indians,” American Journal of Public Health. 108(12), pp. 1613–1616.
· Hagopian, Amy, Kathleen McGlone West, India J. Ornelas, Ariel N. Hart, Jennifer Hagedorn, Clarence Spigner. (2018) "Adopting an anti-racism public health curriculum competency: the University of Washington experience.” Public Health Reports, 133(4) 507-513.
· Korngiebel, Diane M., Kathleen M. West, Wylie Burke. (2018) "Clinician-Stakeholders' Perspectives on Using Patient Portals to Return Lynch Syndrome Screening Results," Journal of Genetic Counseling. 27(2):349-357. Published online ahead of print, 2017, Nov 21. doi: 10.1007/s10897-017-0179-3.
· West, Kathleen M., Erika Blacksher, Wylie Burke. (2017) "Genomics, health disparities, and missed opportunities for the nation's research agenda," JAMA-- Journal of the American Medical Association. 317(18):1831-1832. Published online ahead of print. doi:10.1001/jama.2017.3096. (full text here)
· West, Kathleen M., Wylie Burke, Diane M. Korngiebel. (2017) "Identifying “ownership” through role descriptions to support implementing universal colorectal cancer tumor screening for Lynch Syndrome," Genetics In Medicine, 19(11): 1236–1244. Published online ahead of print. doi:10.1038/gim.2017.39 (full text here)
· Bowen, Deborah, Travis Hyams, Melody Goodman, Kathleen M West, Julie Harris-Wai, Joon-Ho Yu. (2017). "Systematic review of quantitative measures of stakeholder engagement," Clinical and Translational Science, 10(5):314–336. doi:10.1111/cts.12474. (full text here) **AWARDED TOP 20 MOST DOWNLOADED CTS ARTICLES OF 2018.
· James, Rose, Kathleen M. West, Teresa Madrid. (2013) “Launching Native Health Leaders: Reducing Mistrust of Research Through Student Peer Mentorship," American Journal of Public Health. 103(12): 2215–2219. (full text here)
· Walker, Lorelei, Helene Starks, Kathleen M. West, Stephanie M. Fullerton. (2011) “dbGaP Data Access Requests: A Call for Greater Transparency,” Science Translational Medicine, 3(113). (pdf here)
· West, Kathleen M., Scarlett E. Hopkins, Kim J. Hopper, Gerald V. Mohatt, Bert B. Boyer. (2011) “Found in translation: decoding local understandings of genetics and heredity in a Yup’ik Eskimo community,” Public Understanding of Science, March 14 DOI: 10.1177/0963662510397224. (pdf here)
· Boyer, Bert B., Gerald V. Mohatt, Renee L. Pasker, and Elaine M. Drew, and Kathleen K. McGlone (2007). “Sharing Results from Complex Disease Genetics Studies: A Community Based Participatory Research Approach,” International Journal of Circumpolar Health 66(1). (pdf here)
· Young, Bessie A., Erika Blacksher, Kerri L Cavanaugh, Barry I. Freedman, Stephanie Malia Fullerton, Jeffrey Kopp, Ebele M Umeukeje, Kathleen M. West (Corresponding Author), James G. Wilson, Wylie Burke. "APOL1 Testing in African Americans: Involving the Community in Policy Discussions," American Journal of Nephrology. 50(4):303-311. doi: 10.1159/000502675
· James, Rosalina, Kathleen M. West, Katrina Claw, Abigail Echo-Hawk, Leah Dodge, Adrian Dominguez, Maile Taualii, Ralph Forquera, Kenneth Thummel, Wylie Burke. (2018) “Responsible Research with Urban Indians,” American Journal of Public Health. 108(12), pp. 1613–1616.
· Hagopian, Amy, Kathleen McGlone West, India J. Ornelas, Ariel N. Hart, Jennifer Hagedorn, Clarence Spigner. (2018) "Adopting an anti-racism public health curriculum competency: the University of Washington experience.” Public Health Reports, 133(4) 507-513.
· Korngiebel, Diane M., Kathleen M. West, Wylie Burke. (2018) "Clinician-Stakeholders' Perspectives on Using Patient Portals to Return Lynch Syndrome Screening Results," Journal of Genetic Counseling. 27(2):349-357. Published online ahead of print, 2017, Nov 21. doi: 10.1007/s10897-017-0179-3.
· West, Kathleen M., Erika Blacksher, Wylie Burke. (2017) "Genomics, health disparities, and missed opportunities for the nation's research agenda," JAMA-- Journal of the American Medical Association. 317(18):1831-1832. Published online ahead of print. doi:10.1001/jama.2017.3096. (full text here)
· West, Kathleen M., Wylie Burke, Diane M. Korngiebel. (2017) "Identifying “ownership” through role descriptions to support implementing universal colorectal cancer tumor screening for Lynch Syndrome," Genetics In Medicine, 19(11): 1236–1244. Published online ahead of print. doi:10.1038/gim.2017.39 (full text here)
· Bowen, Deborah, Travis Hyams, Melody Goodman, Kathleen M West, Julie Harris-Wai, Joon-Ho Yu. (2017). "Systematic review of quantitative measures of stakeholder engagement," Clinical and Translational Science, 10(5):314–336. doi:10.1111/cts.12474. (full text here) **AWARDED TOP 20 MOST DOWNLOADED CTS ARTICLES OF 2018.
· James, Rose, Kathleen M. West, Teresa Madrid. (2013) “Launching Native Health Leaders: Reducing Mistrust of Research Through Student Peer Mentorship," American Journal of Public Health. 103(12): 2215–2219. (full text here)
· Walker, Lorelei, Helene Starks, Kathleen M. West, Stephanie M. Fullerton. (2011) “dbGaP Data Access Requests: A Call for Greater Transparency,” Science Translational Medicine, 3(113). (pdf here)
· West, Kathleen M., Scarlett E. Hopkins, Kim J. Hopper, Gerald V. Mohatt, Bert B. Boyer. (2011) “Found in translation: decoding local understandings of genetics and heredity in a Yup’ik Eskimo community,” Public Understanding of Science, March 14 DOI: 10.1177/0963662510397224. (pdf here)
· Boyer, Bert B., Gerald V. Mohatt, Renee L. Pasker, and Elaine M. Drew, and Kathleen K. McGlone (2007). “Sharing Results from Complex Disease Genetics Studies: A Community Based Participatory Research Approach,” International Journal of Circumpolar Health 66(1). (pdf here)
My Work In the News:
- Yong, Ed. (2015) "Making Indigenous Peoples Equal Partners in Gene Research," The Atlantic. (full text here)
- Herndon, Megan (2015). "UW Ph.D. candidates working to include indigenous voices in genomic research," UW Daily. (full text here)