Research Specialties: Qualitative research and evaluation methods, grounded theory, content and discourse analysis;
Atlas.ti qualitative data software; Systematic literature reviews; Applied ethics;
Competency in STATA data analysis software, statistical analyses.
Examples of my projects
Atlas.ti qualitative data software; Systematic literature reviews; Applied ethics;
Competency in STATA data analysis software, statistical analyses.
Examples of my projects
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Research Partners, Not Subjects: Engaging Indigenous Peoples in Genetics
I presented in an invited session at the American Society of Human Genetics annual conference, in Baltimore, October 2015. My fellow panelists and I discussed the ethical engagement of American Indian, Alaska Native, Native Hawaiian communities in genetic research, and shifting norms toward community-driven research. Our abstract and individual presentation titles can be found by scrolling all the way toward the bottom of this page. Ed Yong covered our presentation for The Atlantic. The story can be found here. |
Fabulous colleagues and fellow panelists (left to right):
Keolu Fox: @keolufox
Krystal Tsosie: @kstsosie, web profile,
Joe Yracheta: currently working with
Missouri Breaks Research
(Photo credit, Jason Torres)
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Renal Disease Determinants Working Group: a year-long case study, taking an interdisciplinary approach, to answer the question, "What, if anything, can genomics do to reduce health disparities?"
Our meeting notes and recordings can be found here.
We are currently in the process of drafting publications from this effort, including an ethical analysis of genomics in health and healthcare disparities. Stay tuned!
Our meeting notes and recordings can be found here.
We are currently in the process of drafting publications from this effort, including an ethical analysis of genomics in health and healthcare disparities. Stay tuned!
Data sharing discourse analysis project: a look at various stakeholder perspectives around the sharing of genetic research data. I was a primary researcher on a team of three, lead by Dr. Helene Starks and with Lorelei Walker. We presented our study was presented at the Ethical, Legal, Social Implications (ELSI) Congress in 2011, and as background information for the Exploring Pathways to Trust (EP2T) meeting in 2012. Purposes of this project were to:
1. Summarize benefits and concerns about genetic data sharing from different stakeholder perspectives
2. Identify common ground and language used across stakeholder groups
3. Facilitate discussion of the feasibility & acceptability of proposed solutions
Master's Thesis: "Lessons from the River: Identifying Factors that Influence Comprehension of Genetics Research in a Yup’ik Eskimo Community.” The full text can be downloaded here.
More details coming soon.
More details coming soon.